What is Agenesis of the Corpus Callosum

Written by Maggie Nolan


The Corpus callosum is the main network of nerve fibers that connects our left and right brain hemispheres.

My son Charlie was born without his corpus callosum, and I am an active advocate for spreading awareness about this rare condition.

When we found out at my 20 week scan, I was given advice not to get to investigative and research it on the internet, as it is a rare condition with a large spectrum that isn’t completely understood. However, I needed to satisfy my curiosity and so I looked it up in my Anatomy/ Physiology books that I had from my study as a remedial massage therapist.
We were reassured that our baby was at the lower end of the spectrum and we felt positive, always having a deep knowing that our strong little boy would be ok.

He was born healthy and strong at nearly 9 pounds! However they discovered also that he had hydrocephalus (fluid on the brain) in which he had surgery at 3 months to insert a reservoir/shunt.

My son is absent of a large part of his brain and he has had brain surgery. What an amazing kid we have..
Charlie is currently doing so well with all the early intervention and support we have put into place.
Which has made all the difference in his world and has prepared him for school, as well as socially and physically.

Charlie and our family are involved with the Queesland Brain institute as one of 40 families involved in important life changing research into this rare condition.

I’m asking for support to help bridge the gap and make a connection for a positive change for Brains by making a donation, any amount will make a huge difference.

If you would like to make a donation, please come on into Time to Unwind or click the link below.

Much love,

Maggie Nolan

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